Better Care
for Dementia
Telling stories and learning from a collective of experiences to build better support systems and solutions for dementia.
Latest Articles
The memories may fade, but the love and connection remain timeless. Even if Ye Ye didn't remember who I was in his later years, I know deep down he felt the love surrounding him. And that, to me, is what truly matters. ...
Living in a vibrant household in Bangladesh, my family and I share a deep bond of love and responsibility. Among us is my 76-year-old mother-in-law, who was diagnosed with dementia a few years back. This is our story, which started in 2016 when the subtle signs of forgetfulness began to surface in my mother-in-law. ...
Many caregivers find themselves unexpectedly overwhelmed, balancing the needs of their care recipients alongside their jobs, families, and other obligations. In some severe instances, the lack of support at home might mean the need to rely on long-term care solutions. For caregivers to embark on this journey of self-care, it is imperative to first understand the nature of caregiving stress. ...
Being a caregiver while growing up wasn’t something I planned for. But I’ve learned how to manage stress, how to take charge, and how to care for someone with love and patience. ...
The memories may fade, but the love and connection remain timeless. Even if Ye Ye didn't remember who I was in his later years, I know deep down he felt the love surrounding him. And that, to me, is what truly matters. ...
Living in a vibrant household in Bangladesh, my family and I share a deep bond of love and responsibility. Among us is my 76-year-old mother-in-law, who was diagnosed with dementia a few years back. This is our story, which started in 2016 when the subtle signs of forgetfulness began to surface in my mother-in-law. ...
Many caregivers find themselves unexpectedly overwhelmed, balancing the needs of their care recipients alongside their jobs, families, and other obligations. In some severe instances, the lack of support at home might mean the need to rely on long-term care solutions. For caregivers to embark on this journey of self-care, it is imperative to first understand the nature of caregiving stress. ...
Many caregivers find themselves unexpectedly overwhelmed, balancing the needs of their care recipients alongside their jobs, families, and other obligations. In some severe instances, the lack of support at home might mean the need to rely on long-term care solutions. For caregivers to embark on this journey of self-care, it is imperative to first understand the nature of caregiving stress. ...
Finding an exercise routine is really important; doing something that’s manageable and can fit into our day, like 20 to 30 minutes of working out, going for a walk, or developing a yoga or simple stretch routine to work out at home, can help elevate our physical health. ...
Caring for yourself is one of the often overlooked tasks you can do as a caregiver because when your needs are taken care of, the person receiving care will benefit too. ...
Samira Ahmed provides a heartfelt account of the journey of Late Habibur Rahman, her father-in-law, and his family as they navigated the challenges of Dementia. ...
Ted and I were inseparable as identical twin brothers for 78 years. Our lives were filled with shared experiences, laughter, and an unbreakable bond. ...
Cheryl Ng's short film, "But The Heart," provides a profound journey of understanding dementia, transforming perspectives and enhancing caregiving for loved ones. ...
Aaliya Syeda shares her experience witnessing role reversals within her own family as her father became the caregiver for her grandparents living with dementia in Bangladesh. ...
Aaliya Syeda's heartfelt poem illuminates the impact of dementia in her community, urging empathy, acceptance, and the transformative power of love when facing the journey. ...
Based on a simple story, author of MistBound - How to Glue Back Grandpa, Daryl teaches us a powerful lesson regarding intergenerational relationships in our world today, prompting us to think about the changing nature of grandparenting in the era of technology, distractions, and crumbling family structures. ...
‘Walking the Talk for Dementia’ – Fernando Peres, Gustavo San Martin, Bruna Rocha, and Clara Dominguez are on a mission to raise awareness about dementia and advocate for those affected by it. ...
With the growing prevalence of dementia worldwide, there has never been a more urgent need to combine the power of service design and public health to drive positive change in this important area. ...
Caring for a loved one with dementia when you're living in a different country can be challenging, but there are several steps you can take to support them from afar. ...
Long-term care can become a seamless, human-centered system that helps senior citizens get the care they need. ...
I grew up with my grandmother, yet sometimes it feels like I never knew her at all. ...
A conversation with Melanie Lee on the story behind her graphic novel, Amazing Ash and Superhero Ah Ma. ...
Right then, it dawned on Alexis that tonight’s walk could be the last that she would ever have with her grandfather. ...
It was as though his old self had been suppressed beneath a layer of ice and was able to resurface through a crack for just that moment, just to tell us how he felt.” ...
My memories of my Tata (Grandfather in Tamil) were ones of him being a strong-willed man. As he was ageing, we did not know much about dementia back then and just thought he was getting old. ...
After 10 years in Singapore, I moved back to care for my Mum with dementia. I did not realize how difficult it was going to be. I was constantly breaking down. It was through this sheer desperation and helplessness, that Caring With You (CWY) was born. ...
Many of us would want to create the perfect dementia enabling environment for ourselves or for our loved ones to age in place at home. It requires research, costs, time and disruption to our daily routines of which not everyone can afford. Here are five areas to look at when thinking about tailoring your home environment for loved ones with dementia. ...
Many caregivers now find themselves working from home, and caring for a loved one with dementia while being isolated from extended family, friends, and resources like daycare and activity centres. ...
Caring for a loved one with dementia often comes with an immense amount of challenge and responsibility. As a caregiver, you too need to protect your overall well-being. Here are 5 ways to cultivate daily mindfulness as a caregiver. ...
The growing number of people with dementia is encouraging care providers to look to technology as a way of supporting human carers and improving patients’ quality of life. In particular, we want to use technology to help people with dementia live more independently for as long as possible. ...
As part of Designathon 2019, participants were brought through the design-methodology and making process to bring their ideas to life. It was clear that the room was filled with innovators with a common goal of increasing the quality of life for persons with dementia and their caregivers. Heather Taylor, shares her learnings on the steps to take when designing for dementia. ...
As part of Designathon 2019, the Alzheimer’s Disease Association (ADA) provided an Enabling EDIE workshop for participants to experience the feelings of frustration and helplessness to increase empathy and explore intervention strategies for persons living with dementia. Heather Taylor, shares with us her experience during the workshop. ...
Financial and legal matters may not be the first thing that caregivers think about when faced with a loved one’s diagnosis of Alzheimer’s disease or another form of dementia. However, these are important issues that should not be overlooked. ...
In conjunction with World Alzheimer’s Month 2019, Project We Forgot (PWF) and Homage in Malaysia collaborated to run the screening of Ninaivirukkum Varai (Till the last memory) with the goal of bringing the journey of dementia and its impact on caregivers to light. ...
Older adults always need social connection, but they need it now more than ever. The novel coronavirus brings with it unprecedented fear and uncertainty. Vulnerable seniors need help. With face-to-face encounters discouraged, our society must develop creative strategies to help them connect. ...
To mark World Alzheimer’s Month in Malaysia, we handpicked a few articles to help you understand the condition better, learn how to cope with the impact of caregiving and most importantly, remember that you’re not alone in your journey. ...
Ensuring the best quality of life for your loved one can be overwhelming—but the right approach would help you make an informed decision. ...
Dementia does not stop all interactions and communication, there are ways to reach out. ...
Dealing with the diagnosis of your loved one with dementia? These five tips will help guide your journey as a young caregiver. ...
The misconception out there is that dementia and Alzheimer’s are two separate conditions, but in actual fact, Alzheimer’s falls under the umbrella of dementia. ...
There is no cure for Alzheimer’s, but many things can be done to make life better for people with dementia and their caregivers. ...
Do you find yourself torn between priorities: caring for your loved one with dementia, spending quality time with your family, building a career — and making time for yourself? Here are six ways to get respite, build resilience and find a balance that works for you. ...
Current research and dementia care services are typically problem-focused and designed to alleviate the burden on carers. But by promoting resilience and the positive and rewarding aspects of caregiving, we can help to improve the day-to-day lives of both carers and the people they care for. ...
Experiences
Experiences, Support
Care, Support
"If I’ve gained one thing from the journey so far it’s a better sense of perspective. We all know how the journey will end, but the way we get there is up to us."
Keir Gravil
"I want other caregivers to remember that you are not alone, that there are so many of us all over the world, who know exactly what you mean, exactly what you feel, and exactly how alone you feel. Which means you’re not alone."
Julia Dima
"Everyone will have their own unique balance. Find the balance that you can live with so that you will not burn out."
Sue Hsian Yau